Our children affected by DMD need the right diagnosis and special professional care and medical interventions as per global recommendations. It is no longer appropriate to look on DMD as a condition that is inevitably fatal in childhood as the majority can now be expected to reach adulthood with proper care and love. The experts stress that the best management of DMD requires a multidisciplinary approach, with the input of specialists from different areas of care and intervention. An appropriate multi-disciplinary approach for management of these children includes the services of many clinical specialist doctors, lab facilities and specialized equipment like spirometer, Echo cardiogram and Electro cardiogram machines, care givers and rehab specialists.
With the release of the final recommendations from Centre for disease control (CDC, USA) and Treat-NMD on Standards of care for DMD affected children, we have been conducting Multidisciplinary care camps for this purpose.
MDCRC handles children in five stages, Presymptomatic, Early ambulatory, late ambulatory, early non-ambulatory and late non-ambulatory. In these clinics, the parents register and give their consent for the examination. This is followed by lab investigations, ECG, X-Ray chest & Spine, Pulmonary Function Tests and clinical examination by the specialist panel of doctors with appropriate advice as per international guidelines with the expertise of the doctors for our Indian children.
Complete team with Paediatricians, Neurologists, Orthopedicians, Rehab specialists, Physiatrists, Pulmonologists, GI, Nutrition and the Diagnostic team has been formed. Evaluation forms were prepared by the team as per CDC USA & Treat NMD International Guidelines. MD Care camps are conducted on Saturdays at MDCRC.