Boiled Beans on Toast. . Theatre Play – Jan 30, 2015
The new year at MDCRC began by a collaborative effort with the Rotary Clubs of Coimbatore. It was
an English theatre play named “Boiled Beans on Toast”. It was screened on January 30, 2015 at 7 Pm. Venue: PSGCAS auditorium. Tickets were sold at Rs.300, 500, 700 and 1000. The sale proceeds of the tickets would go to MDCRC to fight Duchenne. Though it was a new event for MDCRC to tie up with Rotarians to carry out a fund raising event, it was a great challenge and a thrilling entertainment.
Multidisciplinary Clinical Care – March 2015
DMD does not have a cure and it is the only the management which enables the best results for the children. Multidisciplinary clinical care was held where children came for a routine examination along with their care givers or parents. The patients were scrutinized by various doctors.
They underwent the registration process followed by all the diagnostic tests and then various assessments by different doctors of varying specialties like the cardiology, pulmonology, pediatrics, neurology, orthopedics, physiatrist, physiotherapist. In the middle of the session for relaxation, there was a story telling session too in order to keep the kids cheerful.
The children underwent review session by various doctors. All the assessments were carried out for all the children and finally reports were maintained. Each of the doctors visited from various hospitals and had spared time to visit MDCRC to assess the Duchenne children. Hence, it was more so to assess the progression of the disease and as per the international guidelines, the children less than 10 years need to be assessed only once per year whereas the rest need to be assessed twice per year as the progression of the disease is much more faster. Hence, to conduct a multidisciplinary care is highly essential though it works out very expensive to bring the doctors all together to carry out the session. Twenty children were assessed during April 2015. All these children are on Ayurveda medications too. The assessment was more to understand the impact of ayurveda medicines on the child on a quarterly basis.
April 2015 -Genetic Counseling
Genetic Counseling session provides complete information about the DMD disorder, its causes, symptoms & prevention. The inheritance pattern of the disorder & the importance of carrier testing for female relatives in the family is more useful in preventing this disorder in future generation. Awareness regarding the importance of physiotherapy for better quality of life and the Multidisciplinary Clinical Care sessions conducted at MDCRC.
Two families attended Genetic Counseling (GC) from Tirupur and Coimbatore on April 4, 2015. The GC was conducted for families with children who had results with positive testing for the first level and positive for the second level of testing also. Both group and individual counseling was offered to the family. Counseling was offered based on their Individual family pedigree. The counseling sessions brings to light the future vision of the parents or family and a good understand followed by acceptance of this genetic disorder. Counseling was conducted at MDCRC premises itself under the able guidance of Dr. BR Lakshmi.
World Yoga Day – June 21
One other initiative very close to Dr.Lakshmi’s heart is to integrate Yoga as part of the services offered to children and parents and the apt event was to observe the International Yoga Day (IYD), June 21 and take things further. Apart from all this, MDCRC wishes to unfold the science behind yoga and Duchenne Muscular Dystrophy. Keeping this in the forefront, the celebration on IYD marked the beginning for us to expose all our patients and parents to yoga to feel the difference.
MDCRC celebrated the IYD on June 20, 2015 in its own colors. The venue being Conference Hall, Kurinji Hospital between 10 am to 12 noon.The program was honored by 3 chief guests who cherish the essence of yoga in their lives, namely Mrs. Mohanasundari J, MD, Sharp Industries, Coimbatore, Mr. Srinivasan, MD, Triangle Clothing, Coimbatore and Dr. KC Ramaswami, Chairman, Kurinji Hospital, Coimbatore. The major chunk of the session was handled by Mr. Shankar, K. Head, Integrated Yoga Centre, Coimbatore. Dr. Lakshmi welcomed the gathering and declared open the IYD infusing lots of positive thoughts in the minds of the children affected with DMD and families on how Yoga could make a difference in their lives.
Mrs. Mohanasundari delivered the keynote address where she emphasized about the importance of breathing and explained on the sudharshan kriya methods and the change it has made in her life. Mr. Srinivasan shared his personal experiences on yoga changed his lifestyle from a hectic one to a smooth sailing one wherein he could find lot of inner harmony. Dr. KC Ramaswami, felicitated the gathering by adding of encouragement and the faith that he has towards what more MDCRC can offer to the children affected with DMD.
The session was taken over by one of the most experienced yoga practitioner, Mr. Shankar who had planned various activities. The parents were engaged in few simple breathing exercises including pranayama and lots of tips on how to communicate and perform yoga with the children affected with DMD. The two hour long session ended up with high tea served and feedback from the parents of MDCRC who thanked the organization for what it has been doing and were eagerly looking forward for the Yoga sessions for their children. The programme ended with the complete team doing Thoppukarnam and dispersing after National anthem.
Multidisciplinary Clinical Care – August 2015
Since Multidisciplinary Clinical Care (MD care) is a routine process, once in 3 or 4 month the children are assessed by all the doctors of various specialties at MDCRC. Beginning with the registration in the morning followed by diagnostic tests, assessments by different doctors and amidst all this is the most enthusiastic moment for the child which is the story telling session.
Most of the children who were present at this MD care were on ayurvedic interventions. Following the August MD Care a comparative study was done to assess the impact of alternative medicines on the Duchenne children. Twenty 24 children attended the care session on two consecutive days.
On September 22, 2015, another set of three families attended the counseling. The lab team conducted the counseling for the parents whose children were tested positive for this disorder. The team comprised of Mrs. Kalpana, Ms. Nithya, Mrs. Agila. Both the first level group & individual counseling was offered to parents. Counseling was offered based on their Individual family pedigree.
On September 24, 2015, another set of four families attended GC who were all from the Coimbatore district itself. Proband first level positive cases were considered. After the individual conseling, the carrier samples were drawn from the mothers and sisters with informed consent. On this day, the individual counseling was given following the group conseling. All the parents came up with several questions which made the session very interactive. For some of them, even the blood sample was drawn to do the carrier testing.
WORLD DUCHENNE AWARENESS DAY – September 6, 2015
The gala event of World DuchenneAwareness Day (WDAD),was celebrated by MDCRC, Coimbatore on September 6, 2015 at Jennys Club lawn. It was indeed a pleasant evening from 3:30 pm to 6:30 pm. The occasion had invited delegates from various walks of life who would inspire the children and parents to the maximum by inducing positive thoughts and high spirits.
The little heros of MDCRC, were considered as the chief guests who were warmly welcomed by fruit punch and cookies of various kinds. The pre program event was made very interesting with amazing balloon shows and decorating their individual wooden cars with stickers. Each kid was engrossed in sticking colorful stickers on their wooden cars with their names on it to make it look unique from each other.
The clock struck 4:30 pm, Mr. Shankar Yoga sir, started announcing for the program and the formal Duchenne Awareness Day program began with a prayer song followed by the Welcome note read by Mrs. VeenaPathy, close associate and well wisher of MDCRC. The guest of honor was Mrs. Swarnalatha who gave a very inspiring speech followed by a song for the kids. She stunned the audience with her sweet melody. Next, the special address of the day was given by Padmashree Dr. Krishnakumarji , Chairman, AVP, Coimbatore. With lots of prayers he along with Dr. Noorul Amin, physiatrist, Government Hospital, Coimbatore let out a huge bunch of balloons into the air with several prayers of the kids written to reach the divine and hoping it would bring their prayers true.
Next program in the agenda was the magic show. Mr. Super Raja, magician from Bavani came all the way to entertain the kids and all the children were totally in a different world for a few minutes. His show was so fascinating that it drew the attention of every individual. The kids were enthused with the next program which was the car race. Each kid had made his wooden car very decorative and let it run down the ramp. Among the three cars, the one which was first was chosen for semifinals and then the grand finale. Three cars were taken as the prize winning cars, Master Kavin won the first place, second prize was bagged by Master Ravishankar and third place was won by Master Sivashankar.
The event ended with refreshments where the parents and children enjoyed interacting with each other. The media persons interacted with the kids and parents found that the children were overjoyed at the fun filled event. Some kids left the place saying they wanted another event very soon so that they could be with their friends and have a great time once in a while. We are extremely grateful for all our patrons, guests, parents and children who made the event a wonderful one. Thank u all for your support.
The request from parents was…can we one such event every month. Yes , such events peps up the spirits of the kids and families with Duchenne, bring in a lot of contentment to the people involved and we give the taste of sharing to young college volunteers !! Together we make a difference !
On October 15, the MDCRC lab team conducted GC where families from different parts of the state had attended like Coimbatore, Tirupur and Erode. The GC was given to the proband positive patient’s families with both the group counseling followed by individual counseling. After Individual Counseling Session, 5 Carrier Samples were collected with Informed Consent Individual Counseling was offered based on their Individual family pedigree.
Genetic Counseling Session was held at DDHS Office, Pallaiya Nattanmai Kattadam, Opp. to GH, Salem at 5th Nov 2015. This session of GC was a part of the outreach program. About 16 families were called for GC, but only 13 families attended. Three of the families were from Namakkal, 9 families from Salem and one family from Tuticorin. Counseling was offered in group & individual based on their family pedigree. After Genetic Counseling session 9 carrier samples were drawn with the informed consent for carrier analysis. Good feedback was obtained from each family.