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May 20, 2014

Art Collection

MDA way back in 2012 had conducted a fascinating MD Art Collection where the children participated in bringing out the hidden talent in them. They portrayed several interesting pieces of art in both color and black white which was a feast for the eyes. It was a great event. I wish our children who are bound to homes would feel very encouraged if any of the organizations could sponsor an art collection for our children. Perhaps they can make some paper krafts or just sketch something or anything under the sky they find interesting they can lay their hands on to bring out a masterpiece which would be showcased in the city of the sponsored. For further reading log on to http://quest.mda.org/categories/mda-programs.

 

June 28, 2014

Amusing Shoes For Muscular Dystrophy Kids

Here is a surprise for all the children using AFO (ankle foot orthosis) braces. It has always been a disappointment for children that they could not wear shoes over their braces. Now my friend’s little son who wears AFO braces happily squeezes his feet into a new type of tailor-made shoes along with his braces. He is so excited that he can wear shoes and look alike the other children in school. If you would like to share this info with people who would benefit from this, please ask them to log on to www.hatchbacksfootwear.com. I am sure both the child and the parents will be happy using the specialized shoes which look very much similar to the regular shoes. Get set and go….

 

August 1, 2014

Wheelchairs Would Be A Blessing

Hi everybody…. We know handling the physically challenged children is very sensitive and it becomes a challenge as the children grow older and they put on weight. Most of the parents often feel that a wheelchair at home would be a blessing so that the children feel more independent and they also feel delighted. Unfortunately, for the children who cannot afford a wheelchair they find it very difficult to handle the child. So, I humbly request the generous hearted fellow readers of this blog to lend a helping hand by wheelchairs for the children. Please get in touch with www.mdcrcindia.org.

 

July 10, 2014

View Of A Volunteer

Hello there!! The best gift God has bestowed upon me is to place me at a pedestal where I can help my fellow citizens. I was pleasantly surprised by looking at the children on every multidisciplinary care conducted at MDCRC, Coimbatore. Each of them was so cheerful and filled with enthusiasm. They are overflowing with energy which radiates into us. MDCRC provides various care services like physiotherapies, psychosocial counseling, pediatric, neurologic, orthopedic, physiatry, cardiac and respiratory consultation. Each child is consulted by doctors of each of the above specialty. Most striking feature is MDCRC offers everything free of cost for the patients. The children were entertained with a story telling session during the afternoon and continued consultation later. By evening it was all done and we bid goodbye and transported the children to their respective vehicles to go home. From the moment they enter MDCRC till they go home, it was such a wonderful experience to be with the children all day. At the end of the day, feel so grateful that I have spent my day in a very useful way at MDCRC as an active volunteer.

 

July 30, 2014

Adolescence And Physically Challenged

There is a blanket of grief spread over the adolescent boys with DMD. As the children approach their early teens, they become more conscious about themselves and the surroundings. They have a deep sense of shyness and feel creep into their cocoon. They do not want to come out of their homes, don’t want to socialize, sometimes even don’t come out of their rooms at home. They are comfortable when left alone and contented with themselves. They realize they are not in par with their peers and find it very difficult to take it up as a challenge in their lives. So, I suggest we must help these children by motivating them that they are in no way less than the others and are in par with their peers. Rather, at times their IQ is higher than their school going normal peers. We must talk to them, motivate them, encourage them and make them feel they are important to us. Let us join hands to volunteer this cause to see many more smiles around us. If there is anything you would like to do please help MDCRC to show you a way to share your concern for these children.

 

May 2, 2014

DMD And Nutrition

Food for thought goes the old saying but in our context it is now food for action. Children tend to put on weight as their mobility tapers down. Some children gain weight over the years due to the administration of steroids and a handful of them perhaps due to age. It is good to keep them on low fat diet yet on high protein diet with good calcium supplements. Let us try to enrich their foods with lot of colours by adding lot of veggies – orange, green, purple, yellow and what not. They are rich in minerals, vitamins, beta carotenes, calcium, and contain lot of moisture. The children fed on these diets gain a predominant source of antioxidants also which in turn help to scavenge free radicals. So, let us make the plates of our kids palatable and yummy with good nutritional values. Do join hands to share interesting recipes for kids that would add more strength to them at the same time not contribute towards gaining body weight.

 

May 16, 2014

Born As An Artist

Friends I would like to share a brilliant piece of information with you. My friend who is diagnosed with DMD is on top of the world in my heart. He has dedicated himself to music and plays some of the finest keyboard notes ever heard. He has been a source of inspiration for so many. His notes are the speech of angels and makes one feel so heavenly. My friend has been practicing since his childhood and it is a passion for him. His source of joy, courage, happiness, support and everything is his music for him.

 

August 12, 2014

Happy Birthday To All!

May you blow your candles and may all your wishes come true on your birthday dear all. I had been to MDCRC as a visitor one fine day during the multidisciplinary care and to my surprise I saw candles blown down with a birthday bash. Yes the team was celebrating the birthday of a DMD kid who was their patient. It was such a wonderful day to see the kids smile and laugh and clap hands in joy cheering up the birthday boy. Well, I wish we had chance to greet each and every kid on their birthday which is a very special day. But no, we don’t get to meet every kid on their respective birthdays. But I would like to make a mention that each day is a birthday for us. Are you amused at this? Each day we are born alive and new into this world. Each day dawns new with new horizons and lot of hope. So everyday it is a new day and it is the birth of a new day for Us. So it is a very HAPPY BIRTHDAY TO EACH OF US EACH DAY. Let us rejoice each day and celebrate and live the day to the fullest extent. From this perspective, I greet all of them.

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